We now live in Texas and have two amazing and wild-as-all-hell little boys*. Gracie is still with us and going strong at almost 9 years old. I have fallen in love with powerlifting** and I am working on starting my own nutritional consulting business. 9 years ago, I was worried about how this diagnosis and the following surgeries would affect my life. I have to say, they are not holding me back at all.
In 3 days, Scott and I will be waking up at 3 am and
taking our 1st ever vacation alone together traveling to Houston to go to MD Anderson for The Yearly Checkup. Last year, I saw a doctor locally. He found “hundreds of polyps in the J-pouch and duodenum” (and was unable to remove most of them due to the amount). I asked him what this meant for the future. Would I one day be facing a pancreatoduodectomy or a return to the illeostomy? He responded with “I don’t know”. Now, in his defense he as only seen one other FAP patient in his medical career. With that, I decided I needed to be seen by someone. . . oh just a little more specialized.
Which brings us to MD Anderson. While at MD Anderson not only will I be getting upper and lower scope, but I will also be getting my thyroid screened and checked for desmoid tumors (especially important since I have had 2 c-sections in 3 years). Talk about 3 birds with one stone! I am also hoping to find out if a chemopreventative might be something that could help slow down the growths.
This trip will be the longest that I have ever been away from my boys. I am trying to think of it as a mini vacation. A vacation that will include some fasting, some uncomfortable procedures, some dr visits, lots of waiting rooms and some poking and prodding. But there will be a hotel! And it will be just Scott and I! And restaurants! Restaurants without little ones in tow! (Well, when I’m not undergoing The Prep.) Truth of it is, I am more nervous about leaving the boys then I am about the procedures. We are planning to be there for 3-7 days. So far I have only been away from them for one night. Thankfully I have a wonderful mother-in-law who is flying down to watch the boys for us.
I will update here when we get the results. I also might (just might) do some live updates to snapchat. (For the record I have no idea what I am doing with snapchat. But, I am under the impression that no one knows what they are doing with snapchat, so it's all good)
*(Yes, FAP is an inherited autosomal dominant gene. Yes, they both have 50/50 odds of having the gene. No, I won’t discuss their DNA here. That is their story to tell if/when they want to tell it.)
** (I’m not very good at the powerlifting thing yet, but I am working on it! Recently hit a 1x bodyweight bench, 1.5x bodyweight squat and I working on a 2x bodyweight dead lift.)