Wednesday, December 24, 2008
Friday, December 19, 2008
Thursday, December 18, 2008
Tuesday, December 16, 2008
Monday, December 15, 2008
Friday, December 12, 2008
Thursday, December 11, 2008
Two weeks until Christmas. It sure doesn't feel like it. This suppose to be the "most wonderful time of the year". I'm just not feeling it this year. There is no holiday spirit at the Stolen Colon house. No tree, no lights, no holiday music, no gifts. . . What's the point? We'll be at Mayo over most of the holiday and my medical b.s. has eaten up all the finances that would have went to Christmas. Don't mind me, I am just throwing myself a Scrooge style pity party. Originally the plan was to drive to FL, to spend the holiday with my family. We have only spent one Christmas with my family in the last 7 years. I had high hopes that after the Mayo procedure, we could hop in the car and make the 30 plus hour trek to FL. But yeah, once I quite dreaming I realized that A. we might not get the a-ok to leave mayo in time and B. that it is contingent of Scott's job letting him have more time off. Ha.
Wednesday, December 10, 2008
Tuesday, December 9, 2008
Wednesday, December 3, 2008
Monday, December 1, 2008
Tuesday, November 25, 2008
Monday, November 24, 2008
- "It's only a 50% chance." or
- "cancer research has come so far, imagine where it will be in another few years." or
- "you have FAP and you're ok."
Thursday, November 20, 2008
Wednesday, November 19, 2008
Friday, November 14, 2008
- Cheese. Warm creamy brie, tangy feta, smooth goat cheese on a crisp cracker, stringy mozzarella a top a pizza. I could go on and on. . .
- Milk. Cool crisp glass of milk with a warm cookie. One side effect of the surgeries is that I am now severely lactose intolerant. You never realize how many foods have dairy in them until you have to avoid them.
- Ice Cream. Soy Ice Cream just doesn't cut it. It is really just a sad joke. I almost cried while watching Scott enjoy some Ben and Jerry's Chubby Hubby the other night.
- Vegetables. Man, what I wouldn't do for some roasted broccoli or asparagus right now. Hopefully down the road, I will be able to add them back in. But for now they cause more pain then they are worth.
- Italian Food. I can't handle any tomato products or dairy. Think about it, that rules out almost all Italian food. (Incase you're wondering, tomato burns like no other)
Thursday, November 13, 2008
Tuesday, November 11, 2008
Thursday, November 6, 2008
***Today's post is rate MA for mature audiences only. It may contain emotions and facts not suitable for all readers. Reader discrection is advised.***
Tuesday, November 4, 2008
Monday, November 3, 2008
Friday, October 31, 2008
Tuesday, October 28, 2008
Monday, October 27, 2008
Friday, October 24, 2008
Thursday, October 23, 2008
Wednesday, October 22, 2008
I don't feel up to posting, but I just wanted to keep everyone in the know. I'm still at the stinkin hospital. They told me I could leave today as long as I passed a few simple objectives.
- I had to consume 2 meals.
- Keep both meals down.
- Both meals needed to exit via the proper route.
Sounds easy right? Well my body couldn't even do that. My first meal decided it would rather come back up instead of going down. And on top of failing those objectives I also developed some incredible abdominal pain (upper right quadrant for you medical junkies) and intense lower back pain.
I hope Gracie hasn't forgotten about me.
I still feel pretty crappy and I was puking again last night. Gotta love the pink bucket. I'm curious to what my doc will say about the vomiting. I really hope it doesn't stop me from getting to eat food today. By the time yesterdays procedure started I hadn't eaten in 51 hours.
Maybe, just maybe I will get to go home today. I'll update after I see the doctor this morning.
Tuesday, October 21, 2008
Yesterday's CT scan did not show any definitive reason for my pooping, or lack of pooping I should say, problem. So, our next game plan is to sedate me and the surgeon will give it a little looksy. Hopefully then he will be able to see whatever the problem is. The surgeon is booked all day today, so we won't be able to do this till sometime this evening. Fun! I get to hang out in the hospital all day today. I swear whenever I have been in the hospital it is always hurry up and wait, hurry up and then wait. . .
The radiologist did notice something of interest on the CT. It appears as though my "common bile duct" was enlarged. Interesting, given that I have those ticking time bomb polyps still cohabiting there. This could be nothing, or it could mean my duodenum polyps are growing. Thank goodness I have an upper endoscopy scheduled for next week. Will this ever end?
Monday, October 20, 2008
If anyone is trying to contact me, my phone is acting up. Just when you need it, it goes crap. If you've tried calling and it goes right to voicemail that is why. Feel free to email. I have my complementary laptop set up next to my bed. Gotta love Lacks. Better then most hotels.
I should hear the results from the CT in morning during Dr Kim's 4:30am check-in.
The attending called my colorectal surgeon and asked about giving me laxatives. He yelled and said you don't give laxatives to someone without a colon, they won't help. Um, doc, you need to tell your office nursing staff that. Cause that would have been nice to know 3 weeks ago!
Friday, October 17, 2008
Thursday, October 16, 2008
Monday, October 13, 2008
Thursday, October 9, 2008
Gracie's mom, was relinquished to the a rescue organization while in active labor. She had a healthy litter of 8 cuties. Right now Mom and babies are living at a fosters house. How could someone just dump a dog? Especially one in active labor?
Wednesday, October 8, 2008
Monday, October 6, 2008
Friday, October 3, 2008
Thursday, October 2, 2008
Wednesday, October 1, 2008
Tuesday, September 30, 2008
Monday, September 29, 2008
Friday, September 26, 2008
Thursday, September 25, 2008
On other bowel related news. . . the bowels have begun to awaken. If you have never experienced post surgery gas pains, there is really no way to describe it. (And no, it is nothing like that time you ate too many hot wings and bruskis.) Before now, I never knew gas pains could bring a grown person to tears. But they can, trust me. While I haven't moved any gas through the new plumbing yet, I have had a few bowel movements. If you can call them that. Post take-down there is suppose to be urgency, frequency and watery consistency. Yeah, I'd say I've had the opposite of that. We are talking constipation and rabbit droppings. (More then you want to hear right? Welcome to my life.) I am concerned this might be related to the "constriction at connection site" that was found during the pouch xray, but in all honesty I have no clue what that even means. Hopefully at tomorrow's 5 am visit with the doc, while in between him pulling out what feels like feet of gauze from of my belly, I can ask him about this. (Yes this is a gross as it sounds.)
And drum roll please. . . If the wound looks good and he deems my bowels are operating all fine and dandy then I may (fingers crossed here!) get to check out tomorrow.
Wednesday, September 24, 2008
My catheter got removed at 6 am this morning, but my bladder did not get the message. By 11am (5 hours and 2 IV bags later) I had finally convinced my nurse I needed the catheter back. (You know you are in pain when you are begging someone to insert a catheter) 1000 ccs of urine later I felt like a new woman. Luckily, my bladder and I are now on the same page.
I was surprised by my post-op pain. Currently I am on Dilaudid and Toradol and they are doing a good job of controlling the pain. I thought it would just be some superficial pain where the incision was, but it is more intense then that. Probably because they are letting the wound heal from the inside out and it is packed with gauze right now. During the procedure the surgeon cut a one inch incision on either side of Stoma Stan, from there he fished out the other end of the small intestines. Once he sewed them back together and placed them back inside my body, he sutured those two sides closed and left the middle open. The whole operation took two hours.
How long will I be in here you ask? Good question. I will be allowed to leave once I am on oral pain meds, eating solids foods and we can see that those solid foods have made their way through me. I'm guessing I'll be able to go home Friday morning that is if I start passing some gas here soon.
**The author cannot be held responsible for any errors in this post due to the use of pain meds. See above.
Tuesday, September 23, 2008
Monday, September 22, 2008
Sunday, September 21, 2008
Saturday, September 20, 2008
Tonight will be my last real meal for awhile. After midnight tonight it's just liquids for me. Tonight also is my brother-in-law's wedding. My sister-in-law, Jess, and I are doing a reading at the ceremony. I'm a little nervous. No, not for standing up and speaking in front of a large group of people (ok I lied I am nervous about that). I'm nervous I'll bite it after standing up. I still after an issue with the fainting. That would be the perfect time for it happen.
Wednesday, September 17, 2008
Tuesday, September 16, 2008
Wednesday, September 10, 2008
Tuesday, September 9, 2008
Monday, September 8, 2008
Sunday, September 7, 2008
Saturday, September 6, 2008
Friday, September 5, 2008
Tuesday, September 2, 2008
Tuesday, August 26, 2008
- He will be emailing me the pictures of my colon that he took after removing it. For some sick reason, I am very excited to see these. Probably to give myself some kind of reminder about why I am going through this.
- The Dr will refer me to some Gastroenterologists here in Grand Rapids that are very versed in FAP. Remember that time bomb in my duodenum? My goal is to get that out of there and avoid the Whipple procedure. The Dr told us that these are some of the best GIs in the state, and if they don't think they have the skill or technology to do it they will refer me to Indiana University. This is a huge load of stress off my shoulders. I hadn't been able to find a doctor with enough experience or skill to remove the duodenum polyps without having open surgery.
- We asked about the pathology report on my colon. We were hoping the "no news is good news" theory was in effect, but we had to double check. While he couldn't find a copy of the report in my chart, he was pretty sure it was good news (NO CHEMO!) He said he will double check and get back to us. Yahoo!!
- And one last tidbit of news. . . we have a tentative date for my "take down" surgery 9/23.