Colon cancer is the uncoolest of all the cancers. I know, all cancers suck really bad. But colon cancer comes with an additional stigma. It is the least talked about cancer. Yet, colorectal cancer is the 2nd leading cause of cancer deaths in the U.S.
It is almost like having colon cancer is something to be ashamed of. How many celebrities have ever come forward with having a colorectal cancer? Ok, Sharon Osbourne, but who else? Really, all those famous people out there and only one publicly announced they had colon cancer? The National Cancer Institute estimates there will be 148,810 new cases of colon and rectal cancers this year.
We don't like to talk about our bowels. Going the bathroom is a private matter, yet we all do it. I will admit, I get a little creeped out just think about putting my personal info out there for my family to read (not as much creeped out about random people reading it, though. Odd.) So, family, be ready to hear about my colostomy, the problems I'll have with it (like leaking everywhere), issues w/ control, butt burn (like diaper rash for adults, lovely!), my new bathroom habits, just to name a few.
But, if little me is able to help change just one person's perspective of colon cancer, colostomies and the like; then maybe there is hope for getting people more comfortable with it. There is still a lot left to learn about colorectal cancers and FAP. Maybe if the stereotype starts to get broken then there will be more funding for research.
With that I vow to be honest and not to sugar coat anything that I may go through on this journey. I have decided, that after my surgeries I plan to post pictures of my incisions, scars and ostomy. It is unfortunate that there is not more pictures out there. If there was, maybe it would help to lessen the stigma that goes along with it. Everyone's initial reaction when they hear I will have to have an ileostomy is: "will you have to have a colostomy bag?" and followed by an "Eeeewww!" Thank you people, that is my body you are ewwwing. And, you know that ostomy that grosses you out, well it saved my life.
Ok, stepping off my soap box for now. Thanks for "listening" to me rant.